Sunday, June 20, 2010

The R.A.R.E. blog

It was my privilege to have had a conversation last week with a contributor from the R.A.R.E Blog. The purpose of the R.A.R.E. blog is simple: “We are moms, dads, sisters, brothers, friends, researchers, clinicians and the like who believe that when people come together in hope that amazing things can happen.” Definitely centered in a core belief such as that, I am excited to develop a blog partnership with them. I too believe that very same thing, having witnessed it many times in my life.

In our experiences with Michael and his rare syndrome Schimke Immunoosseous Dysplasia (SIOD), hope was consistently exhibited when our friends and family gathered with us. Amazing and powerful things occurred in those gatherings which inadvertently increased our capacity to hope in a situation that so often felt hopeless. As parents, we never dream that one day we will be driving a wheelchair accessible van with a handicap license plate on it, but we also can’t even imagine the life altering opportunities it will give such as watching family or friends lift your son out of that vehicle, putting him gently and humbly into his wheelchair. Without a doubt, there was a high price paid for that view but the imprint it left on my heart is priceless. Fortunately I didn’t miss the view by only focusing on the “handicap” portion of it, but instead grace controlled my thoughts and I was able to see it in hopeful amazement.

With every situation we are given a choice whether we are conscious of it or not. We can choose to simply look at our cup half empty, missing the importance of the other portion or we can make a choice to be more hopeful, looking at our cup half full, regardless of what happens in our lives. We must trust and believe that we possess the ability to make quality conscious choices. The power in that ability creating the most out of our experiences makes a positive view available, especially when people come together in hope allowing amazing things to happen. Visit the R.A.R.E. blog here.

No comments:

Post a Comment